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null (Ed.)Various contact tracing approaches have been applied to help contain the spread of COVID-19, with technology-based tracing and human tracing among the most widely adopted. However, governments and communities worldwide vary in their adoption of digital contact tracing, with many instead choosing the human approach. We investigate how people perceive the respective benefits and risks of human and digital contact tracing through a mixed-methods survey with 291 respondents from the United States. Participants perceived digital contact tracing as more beneficial for protecting privacy, providing convenience, and ensuring data accuracy, and felt that human contact tracing could help provide security, emotional reassurance, advice, and accessibility. We explore the role of self-tracking technologies in public health crisis situations, highlighting how designs must adapt to promote societal benefit rather than just self-understanding. We discuss how future digital contact tracing can better balance the benefits of human tracers and technology amidst the complex contact tracing process and context.more » « less
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Challenging behaviors significantly impact learning and socialization of autistic children and can stress and burden their caregivers. Documentation of challenging behaviors is fundamental for identifying what environmental factors influence them, such as how others respond to a child's such behaviors. Caregiver-tracked data on their child's challenging behaviors can help clinical experts make informed recommendations about how to manage such behaviors. To support caregivers in recording their children's challenging behaviors, we developed GeniAuti, a mobile-based data-collection tool built upon a clinical data collection form to document challenging behaviors and other clinically relevant contextual information such as place, duration, intensity, and what triggers such behaviors. Through an open-ended deployment with 19 parent-child pairs and three expert collaborators, caregivers found GeniAuti valuable for (1) becoming more attentive and reflective to behavioral contexts, including their own response strategies, (2) discovering positive aspects of their children's behaviors, and (3) promoting collaboration with clinical experts around the caregiver-tracked data to develop tailored intervention strategies for their children. However, participant experiences surface challenges of logging behaviors in social circumstances, conflicting views between caregivers and clinical experts around the structured recording process, and emotional struggles resulting from recording and reflecting on intensely negative experiences. Considering the complex nature of caregiver-based health tracking and caregiver--clinician collaboration, we suggest design opportunities for facilitating negotiations between caregivers and clinicians and accounting for caregivers' emotional needs.more » « less
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